Healthcare Patient Consent
This page describes an integration pattern for carrying patient consent preferences, emergency contact information, and allergy alerts across healthcare systems using Universal Manifest.
Boundary: normative vs non-normative
Section titled “Boundary: normative vs non-normative”- Normative contract: Specification and Conformance
- Non-normative guidance: this page
All healthcare-specific claims, pointer names, and consent keys on this page are explicitly non-normative.
What you implement
Section titled “What you implement”Inputs
Section titled “Inputs”- A valid Universal Manifest (
um:Manifest) with a patientsubjectidentifier - Resolver or direct retrieval path to fetch current patient manifests
- Clinical system capable of displaying allergy alerts and emergency contacts
Outputs
Section titled “Outputs”- Consent-gated display of allergy and emergency contact information
- Deterministic handling for expired or consent-denied manifests
- Audit trail logging by manifest
@idfor regulatory compliance
Minimum behaviors
Section titled “Minimum behaviors”- Enforce TTL and reject expired manifests (stale consent is a safety risk)
- Check consent keys before displaying any health data (default deny)
- Ignore unknown fields safely
- Log manifest ID for audit purposes without storing full payloads
Use cases
Section titled “Use cases”- Patient intake: A patient walks into a new clinic and shares their UMID. The clinic system reads allergy alerts and emergency contacts — with consent — eliminating paper intake forms.
- Emergency treatment: An ED physician resolves a patient’s manifest to check for drug allergies and contact next of kin, even when the patient cannot communicate.
- Insurance verification: A clinic reads the insurance provider pointer to begin claims processing without manual verification.
Suggested shards
Section titled “Suggested shards”| Shard Name | Purpose | Key Entity Fields |
|---|---|---|
patientConsent | Consent directives and data-sharing preferences | consentType, scope, grantedTo, effectiveDate |
emergencyContact | Emergency contact information | contactName, relationship, phone, priority |
allergyAlerts | Critical allergy and adverse reaction data | allergen, severity, reaction, onsetDate |
Suggested pointer names
Section titled “Suggested pointer names”health.record— patient’s electronic health record (FHIR endpoint or portal URL)health.insuranceProvider— insurance provider portal or coverage documenthealth.primaryCare— primary care provider profile or scheduling endpoint
Suggested consent keys
Section titled “Suggested consent keys”health.shareEmergencyInfo— gates sharing of emergency contact informationhealth.shareAllergies— gates sharing of allergy and adverse reaction datahealth.shareRecords— gates sharing of full medical record references
Consumers should default to deny for any health data use not explicitly consented to.
Suggested claim keys
Section titled “Suggested claim keys”health.role— patient, guardian, or caregiverhealth.coverageStatus— active, inactive, or pending
Example fixture (excerpt)
Section titled “Example fixture (excerpt)”{ "@context": "https://universalmanifest.net/ns/universal-manifest/v0.1/schema.jsonld", "@id": "urn:uuid:a3f7c912-4e8b-4d1a-9f6e-2b8d5c3a7e01", "@type": "um:Manifest", "manifestVersion": "0.1", "subject": "did:key:z6MkpHealthcarePatientExampleDid", "issuedAt": "2026-02-26T08:00:00Z", "expiresAt": "2026-02-27T08:00:00Z", "shards": [ { "@type": "um:Shard", "name": "allergyAlerts", "entity": { "@id": "urn:uuid:b1c2d3e4-f5a6-7890-abcd-ef1234567890", "@type": ["um:Entity"], "name": "Patient Allergy Record", "allergies": [ { "allergen": "Penicillin", "severity": "severe", "reaction": "anaphylaxis" }, { "allergen": "Sulfa drugs", "severity": "moderate", "reaction": "rash and hives" } ] } }, { "@type": "um:Shard", "name": "emergencyContact", "entity": { "@id": "urn:uuid:c2d3e4f5-a6b7-8901-cdef-234567890abc", "@type": ["um:Entity"], "name": "Emergency Contacts", "contacts": [ { "contactName": "Maria Santos", "relationship": "spouse", "phone": "+1-555-0142", "priority": 1 } ] } } ], "consents": [ { "@type": "um:Consent", "name": "health.shareAllergies", "value": "allowed" }, { "@type": "um:Consent", "name": "health.shareEmergencyInfo", "value": "allowed" }, { "@type": "um:Consent", "name": "health.shareRecords", "value": "denied" } ], "pointers": [ { "name": "health.record", "url": "https://ehr.example-health.net/patients/z6MkpHealthcarePatientExampleDid/fhir/r4" }, { "name": "health.insuranceProvider", "url": "https://portal.example-insurance.com/members/z6MkpHealthcarePatientExampleDid" } ]}See the full fixture and implementation details in the integration source.